LJ's Healing Hearts ... our mission and cause.
Our mission is to provide financial and well being support for families impacted by congenital heart defects.
Past Board Members
Karyn Mardak - Founder - President
Kelli Mendonsa - Board Member
What is a congenital heart defect?
- Congenital heart defects (CHDs) are problems with the heart’s structure that are present at birth.
- Common examples include holes in the inside walls of the heart and narrowed or leaky valves. In more severe forms of CHDs, blood vessels or heart chambers may be missing, poorly formed, and/or in the wrong place.
How common are congenital heart defects?
- CHDs are the most common birth defects. CHDs occur in almost 1% of births.
- An approximate 100-200 deaths/year are due to unrecognized heart disease in newborns; this excludes those dying before diagnosis.
- Nearly 40,000 infants in the U.S. are born each year with CHDs.
- CHDs are as common as autism and about 25 times more common than cystic fibrosis.
- Approximately 2 to 3 million individuals are living in the United States with CHDs. There is no U.S. system to track CHDs beyond early childhood, more precise estimates are not available.
- Thanks to improvements in survival, the number of adults living with CHDs is increasing. It is now believed that the number of adults living with CHDs is at least equal to, if not greater than, the number of children living with CHDs.
Specific Congenital Heart Defects
~ Atrial Septal Defect ~ Atrioventricular Septal Defect ~ Coarctation of the Aorta ~ Hypoplastic Left Heart Syndrome ~ Pulmonary Atresia
~Tetralogy of Fallot ~ Total Anomalous Pulmonary Venous Return ~ Tricuspid Atresia ~ d-Transposition of the Great Arteries
~ Truncus Arteriosus ~ Ventricular Septal Defect
Currrent Board Members
Erin Goes – Vice President
Betsy Shannon – Executive Director and Treasurer
Denise Rivero – Secretary
Shelia Wood - Events Director
Lauren Backe - Volunteer Director
Kelly Rice - Bereavement Director